Ontwikkeling van patiëntgerapporteerde uitkomstmetingen en indicatoren
Hieronder vindt u een overzicht van publicaties in de vorm van handreikingen, artikelen en rapporten.
Handreiking voor de selectie van PROs en PROMs; Terwee CB, van der Wees PJ en Sandra Beurskens S; namens het NFU-expertisenetwerk Patient-reported outcomes. Utrecht: Nederlandse Federatie van Universitair Medische Centra (NFU) 2015 Download
Patiëntenparticipatie bij Patient Reported Outcome Measures (PROMs): Een praktische tool voor patiëntvertegenwoordigers bij de selectie en (door)ontwikkeling van PROMs en de inrichting van patiënt-gerapporteerde uitkomstmetingen; Van der Wees PJ en Ildikó Vajda I. Utrecht: Nederlandse Patiënten en Consumenten federatie (NPCF) 2015 Download
Zonjee VJ, Abma IL, de Mooij MJ, van Schaik SM, Van den Berg-Vos RM, Roorda LD, Terwee CB. The patient-reported outcomes measurement information systems (PROMIS®) physical function and its derivative measures in adults: a systematic review of content validity Qual Life Res 2022; 31(12):3317-3330. Pubmed
Nobels-Janssen E, Abma IL, Verhagen WIM, Bartels R, van der Wees PJ, Boogaarts JD. Development of a patient-reported outcome measure for patients who have recovered from a subarachnoid hemorrhage: the "questionnaire for the screening of symptoms in aneurysmal subarachnoid hemorrhage" (SOS-SAH). BMC Neurol 2021; 21(1): 162. Pubmed
Nobels-Janssen E, Postma EN, Abma IL, van Dijk JMC, Haeren R, Schenck H, Moojen WA, den Hertog MH, Nanda D, Potgieser ARE, Coert BA, Verhagen WIM, Bartels R, van der Wees PJ, Verbaan D, Boogaarts HD. Inter-method reliability of the modified Rankin Scale in patients with subarachnoid hemorrhage. J Neurol 2021;1-9. Pubmed
Abma IL, Butje BJD, Ten Klooster PM, van der Wees PJ. Measurement properties of the Dutch-Flemish patient-reported outcomes measurement information system (PROMIS) physical function item bank and instruments: a systematic review Health Qual Life Outcomes 2021; 19(1): 62. Pubmed
Zipfel N, Groenewoud AS, Rensing BJWM, Daeter EJ, Dijksman LM, Dambrink JE, van der Wees PJ, Westert GP, van der Nat PB. Selecting interventions to improve patient-relevant outcomes in health care for aortic valve disease - the Intervention Selection Toolbox. BMC Health Serv Res. 2020 Mar 19;20(1):232. Pubmed
Abma IL, Rovers MM, IJff M, Hol B, Nägele M, Westert GP, van der Wees PJ. Does the Patient-Reported Apnea Questionnaire (PRAQ) increase patient-centredness in the daily practice of sleep centres? a mixed-methods study. BMJ Open. 2019 Jun 14;9(6). Pubmed
Renskers L, van Uden RJJC, Huis AMP, Rongen SAA2,, Teerenstra S, van Riel PLCM. Comparison of the construct validity and reproducibility of four different types of patient-reported outcome measures (PROMs) in patients with rheumatoid arthritis. Clin Rheumatol. 2018 Dec;37(12):3191-3199. Pubmed
Abma IL, Rovers M, IJff M, Hol B, Westert GP, van der Wees PJ. Instrument completion and validation of the patient-reported apnea questionnaire (PRAQ). Health Qual Life Outcomes. 2018 Aug 3;16(1):158. Pubmed
Kampstra NA, Zipfel N, van der Nat PB, Westert GP, van der Wees PJ, Groenewoud AS. Health outcomes measurement and organizational readiness support quality improvement: a systematic review. BMC Health Serv Res. 2018 Dec 29;18(1):1005. Pubmed
Kampstra NA, Grutters JC, van Beek FT, Culver DA, Baughman RP, Renzoni EA, Wuyts W, Kouranos V, Wijsenbeek MS, Biesma DH, van der Wees PJ, van der Nat PB. First patient-centred set of outcomes for pulmonary sarcoidosis: a multicentre initiative. BMJ Open Respir Res. 2019 Feb 18;6(1):e000394. Pubmed
Kampstra NA, van der Nat PB, Dijksman LM, van Beek FT, Culver DA, Baughman RP, Renzoni EA, Wuyts W, Kouranos V, Zanen P, Wijsenbeek MS, Eijkemans MJC, Biesma DH, van der Wees PJ, Grutters JC. Results of the standard set for pulmonary sarcoidosis: feasibility and multicentre outcomes. ERJ Open Res. 2019 Oct 30;5(4):00094-2019. Pubmed
van Overveld LFJ, Takes RP, Turan AS, Braspenning JCC, Smeele LE, Merkx MAW, Hermens RPMG; Dutch Head and Neck Audit Group. Needs and preferences of patients with head and neck cancer in integrated care. Clin Otolaryngol. 2018 Apr;43(2):553-561. Pubmed
van Overveld LFJ, Takes RP, Vijn TW, Braspenning JCC, de Boer JP, Brouns JJA, Bun RJ, van Dijk BAC, Dortmans JAWF, Dronkers EAC, van Es RJJ, Hoebers FJP, Kropveld A, Langendijk JA, Langeveld TPM, Oosting SF, Verschuur HP, de Visscher JGAM, van Weert S, Merkx MAW, Smeele LE, Hermens RPMG. Feedback preferences of patients, professionals and health insurers in integrated head and neck cancer care. Health Expect. 2017 Dec;20(6):1275-1288. Pubmed
Abma IL, Rovers M, IJff M, Hol B, Westert GP, van der Wees PJ. The development of a patient-reported outcome measure for patients with obstructive sleep apnea: the Patient-Reported Apnea Questionnaire (PRAQ). J Patient Rep Outcomes. 2017;1(1):14. Pubmed
van Overveld LF, Braspenning JC, Hermens RP. Quality indicators of integrated care for patients with head and neck cancer. Clin Otolaryngol. 2017 Apr;42(2):322-329. Pubmed
van der Wees PJ, Wammes JJ, Akkermans RP, Koetsenruijter J, Westert GP, van Kampen A, Hannink G, de Waal-Malefijt M, Schreurs BW. Patient-reported health outcomes after total hip and knee surgery in a Dutch University Hospital Setting: results of twenty years clinical registry. BMC Musculoskelet Disord. 2017 Mar 3;18(1):97. Pubmed
Abma IL, van der Wees PJ, Veer V, Westert GP, Rovers M. Measurement properties of patient-reported outcome measures (PROMs) in adults with obstructive sleep apnea (OSA): A systematic review. Sleep Med Rev. 2016 Aug;28:18-31. Pubmed
Abma IL, Rovers M, van der Wees PJ. Appraising convergent validity of patient-reported outcome measures in systematic reviews: constructing hypotheses and interpreting outcomes. BMC Res Notes. 2016 Apr 19;9:226. Pubmed
Van der Wees PJ, Nijhuis-van der Sanden MWG, Ayanian JZ, Black N, Westert GP, and Schneider EC. Integrating the Use of Patient-Reported Outcomes for Both Clinical Practice and Performance Measurement: Views of Experts from Three Countries. The Milbank Quarterly 2014; 92(4):754-775 PubMed
Kyte DG, Kalvert M, van der Wees PJ, ten Hove R, Toan S, Hill JC. An introduction to patient-reported outcomes (PROMs) in physiotherapy. Physiotherapy. 2015 Jun;101(2):119-25. doi: 10.1016/j.physio.2014.11.003. Epub 2014 Nov 28. Download PubMed
Groenewoud A.S. Value based health care – een introductie. Kwaliteit in Zorg 2014; 4:4-9 Download
Van der Wees PJ en Martin Moons M. Toepassing van patiënt-gerapporteerde uitkomsten in de fysiotherapie. Physios 2014; 6(2):46-53. Physios
Literatuurstudie voor het gebruik van PROMs behorende bij de PROM-wijzer (2018) Open rapport
Eindrapport Kwaliteit in Beweging (2017) Open rapport
Ontwerp van een minimale dataset voor lage rugklachten en COPD in de fysiotherapie (2017)
Open rapport